ABOUT US

Rare Bootcamp

The Rare Bootcamp is a multi-day forum hosted by Ultragenyx and EveryLife Foundation for Rare Diseases to provide parents and other patient advocates seeking to develop rare disease therapies with an opportunity to connect with their peers and to learn from rare disease drug development experts.

UPCOMING EVENT
NOV 11-13, 2025
Ultragenyx HQ, SF Bay Area, CA
RESOURCES

Thank you for attending!

You can find the presentation materials here. Refresh your knowledge as you move through the journey toward a medicine

Access Presentations
ARTICLES

Rare Bootcamp in the news

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MassBio

Rare Disease Parents: Finding Your Community and Your Voice

Guest Blog By Erin Frey, Senior Director, State Government Affairs, Ultragenyx

Thank you to our 2025 sponsors and partners